Events
Dental Manifestations of Noonan Syndrome
Webinar held September 7, 2025
Dr. J. Noonan Legacy 5k
October 21-28, 2025
Join us for the first annual Dr. J. Noonan Legacy 5K — a family-friendly, virtual event that unites people everywhere in celebration, honor, and advocacy for the Noonan syndrome community. Whether you walk, run, or roll, every step you take helps raise awareness, support families, and strengthen the movement for better understanding and care for those living with Noonan syndrome.
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This special event takes place in honor of Dr. Jacqueline Noonan’s birthday, commemorating her groundbreaking work and lifelong dedication to the children and families she served. Together, we’ll celebrate her legacy, honor the strength of those living with Noonan syndrome, and advocate for a future filled with greater understanding, compassion, and hope.
NSF Family Conference
Summer of 2026
The Noonan Syndrome Conference is held biannually in alternating cities around the USA. Families and individuals travel to the conference to hear the latest medical information from our panel of experts, participate in activities, and leave the conference with new lifelong friends. Connecting with others who understand can be life-altering! We hope you can join us in the Summer of 2026 in Austin, TX. The conference will be held at the Kalahari Resort and Hotel.
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Click here to register for the 2025 NSF Family Conference.
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