Thursday July 30
General Sessions (Rooms ABCD)
9:00-9:45 am - A Heart to Heart Chat: Cardiac Involvement in Noonan Syndrome
Dr. Gelb
9:45-10:30 am - Musculoskeletal Findings in Noonan Syndrome
Dr. Stevenson
10:30-10:45 am - Break
10:45-11:30 am - Chronic Pain in Noonan Syndrome
Dr. Roberts
11:30 am-12:15 pm - TBD
Dr. Weaver
Pathway A (Rooms AB)
1:15-2:00 pm - Feeding Difficulties in Noonan Syndrome
Dr. Shiels
2:00-2:45 pm - Caregiver Burnout: Tangible & Realistic Steps Towards Improving Family Quality of Life
Dr. Ellison
2:45-3:00 pm - Break
3:00-3:45 pm - Disordered Bleeding in Noonan Syndrome
Dr. Briggs
3:45-4:30 pm - Behind the Letters: A Guide to Understanding Your Genetic Test Results
Pilar Magoulas
Pathway B (Rooms CD)
1:15-2:00 pm - Neurodevelopment & Mental Health in Youth with Noonan Syndrome
Dr. Pierpont
2:00-2:45 pm - From Genes to Behavior: Autism Related Traits in Noonan Syndrome & NSML
Chloe Deakin
2:45-3:00 pm - Break
3:00-3:30 pm - To Test or Not to Test? Utility of Pediatric Neuropsychological Evaluations, and How to Make the Most of One
Dr. Ellison
3:30-4:00 pm - IEPs, 504 Plans and Noonan Syndrome: Building Effective Educational Pathways
Ruth Sherrard
4:00-4:30 pm - Q&A Panel of Afternoon Speakers
Friday July 31
General Sessions (Rooms ABCD)
9:00-9:45 am - GI Considerations in Noonan Syndrome
Dr. El-Chamas
9:45-10:30 am - Why Doesn't My Doctor Know Anything About Noonan Syndrome?
Dr. Shiels
10:30-10:45 am - Break
10:45-11:30 am - Growth Hormones and Beyond: Endocrine Considerations in Noonan Syndrome
Dr. Katie Dolak
11:30 am-12:45 pm - The Future is Bright!
Panel
Pathway A (Rooms AB)
1:45-2:30 pm - Understanding the Connection: Noonan Syndrome, Chiari Malformation, and Tethered Cord Syndrome
Dr. Petra Klinge
2:30-3:15 pm - The Milky Way: Lymphatic Involvement in Noonan Syndrome
Dr. Gelb
3:15-4:00 pm - Occupational Therapy for the Young Child
Lisa Otto
Pathway B (Rooms CD)
1:45-2:30 pm - Dental Manifestations in Noonan Syndrome
Dr. Browning
2:30-3:15 pm - Growing up with Noonan Syndrome: Puberty & Future Family Choices
Dr. Weaver
3:15-4:00 pm - Transitioning to Adulthood
Michelle Gray