Did you know that NS may be as common as Down syndrome?NS may impact 316,600 people in the United States and 7,094,286 people worldwide.​

Did you know that NS is complex and can cause issues is any/every area of the body?The NS community needs worldwide support.

Hope & Help Now

We know that effective medical treatments may be years away and that the NS community needs our help now. That is why the NSF provides an online support group; to help each other cope with the challenges of raising a child with a medically involved disorder. Please join our private Facebook Group titled the Noonan Syndrome Foundation.


The Noonan Syndrome Foundation (NSF) is the leading 501(c)(3) non-profit, charitable Noonan syndrome (NS) organization.


Our mission is to Support, Educate, and Advocate for those with Noonan Syndrome.


Noonan Syndrome - The Most Common Rare Syndrome You've Never Heard Of