Doctors and Clinics

FIND A DOCTOR

The Noonan Syndrome Foundation (NSF) supports the vital role that a Noonan Syndrome (NS) or RASopathies clinic can play in improving the lives of those impacted. Below is a list of doctors and medical clinics available. If you have a compliment or complaint about an NS Clinic you'd like to share with the NSF, please email us at:

info@teamnoonan.org

or mail to:

Noonan Syndrome Foundation

306 Exchange Blvd #156

Bethlehem, GA 30620

If you are a doctor or work in an NS or RASopathy clinic and would like to be added to this list, please contact us at: info@teamnoonan.org.

NS is also known as a RASopathy syndrome or one of the "RASopathies" (a group of genetically related syndromes). Many Neurofibromatosis (NF) clinics are changing their names to become "RASopathies" clinics.

For a list of NF clinics, please visit: NF Find a Doctor or CTF Find a Doctor

LIST OF PROVIDERS

National

Boston Children's Hospital

Dr. Amy Roberts

Director, Cardiovascular Genetics Research Program

Assistant Professor of Pediatrics, Harvard Medical School

300 Longwood Avenue, Bader, 2nd Floor, Boston, Massachusetts 02115

http://www.childrenshospital.org/directory/physicians/r/amy-roberts

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Mount Sinai Hospital

Dr. Bruce Gelb

Co-Director, Cardiovascular Genetics Program

1468 Madison Ave., Suite 3-50, New York, NY 10029

http://www.mountsinai.org/ profiles/ bruce-d-gelb

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Children's Wisconsin

Neurofibromatosis and RASopathy Center

Dr. Donald Basel

Director, Genetics

9000 W Wisconsin Ave, Milwaukee, WI 53226

Clinic Appointments: 414-607-5280

https://childrenswi.org/medical-care/genetics-and-genomics-program/programs-and-services/neurofibromatosis-and-rasopathy-program

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Children's National Hospital

Clinic Coordinator: Monisha Samanta, MSCGC

Email: msamanta@childrensnational.org

111 Michigan Avenue, Washington, District of Columbia 20010

http://www.childrensnational.org/ departments/ genetics-and-metabolism/ noonan-spectrum-disorders-clinic

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Cincinnati Children's Hospital Medical Center

Dr. Nicole Weaver, Co-Director, RASopathies Program

3333 Burnet Avenue

Cincinnati, OH 45229

For inquiries about our clinic, please contact RASopathies_Clinic@cchmc.org.

To schedule an appointment, please call 513-636-4760

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C.S. Mott Children’s Hospital, University of Michigan
Dr. Joshua Meisner, Co-Director, RASopathy Multidisciplinary Clinic
1540 East Hospital Drive
Ann Arbor, MI 48109

For questions or more information about the clinic, please contact:

Joshua Meisner, MD, PhD. Email: jmeisner@med.umich.edu

To schedule an appointment, please call 734-764-5176

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Nemours - Al Dupont Hospital for Children

Dr. Karen Gripp

http://www.nemours.org/ service/ medical/ map.html?tab=location

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University of Minnesota Masonic Children's Hospital

Mary Ella Pierpont, MD, PhD

Clinical Geneticist and Pediatric Cardiologist

Interests: Noonan syndrome and other disorders of the RAS pathway