Noonan Awareness Syndrome Month
February is Noonan Syndrome Awareness Month, and we’re inviting our community to help raise awareness by sharing your story!
Request a Banner/Profile
To kick off our 2025 fundraising, we are offering custom social media banners and profiles inspired by this year's theme, Born to Bloom. Want your own? Just email cari@teamnoonan.org a photo along with a name and gene variant. (e.g., PTPN11, SOS1), or whatever details you're comfortable sharing.
Donations can be made via PayPal or through our official website. While contributions are deeply appreciated, they are never required to participate!
Spotlight Submission
"Behind every diagnosis is a story of resilience. We want to spotlight the heart of our community: YOU. Whether it’s a personal milestone or a major achievement, help us celebrate the journey of living with Noonan syndrome.
Please share your story using [this link] and email two photos—ideally a 'then and now' comparison—to Krystal@teamnoonan.org to be featured!"
NS Awareness Facts
Awareness starts with information. This February, the NSF—with the support of our Medical Advisory Board—will share a new graphic every day to spark vital conversations. While these facts provide a baseline, we recognize that every individual’s journey and severity with these conditions is unique. Our goal is to spread knowledge, foster understanding, and offer a little encouragement along the way. Join us by sharing these posts!
NSF Store
In honor of Noonan Syndrome Awareness Month this February, the Noonan Syndrome Foundation is proud to announce that new additions have been added to our online store. Every purchase helps us continue our mission of support and advocacy.
Visit the NSF Fundraising Storefront to browse our new collection.